At Blaydon RFC we are asking for your support in sharing the story of one of our young player’s families. Louis has 2 sisters, Nicole & Jessica who both have a rare life limiting genetic condition.
The family travel to Great Ormond Street every 2 weeks for the girls, which is a 4 hour enzyme replacement brain infusion. Sadly, the family have just been told that the treatment they get will not be funded by NHS as it is deemed ‘not good value for money’. This treatment is saving the girls lives & could be Jessica’s cure.
The family is obviously devastated but will keep fighting.
Please see the recent Sunday Mirror article and also their facebook page, links below:
The family are arranging a fundraising ball on Saturday 6th July at The Grand Hotel Gosforth, details on poster below on what you need to do to attend.